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Hi, I had Vulva cancer 11 years ago now, but for the last 5 weeks have started to have pain and horrible achey discomfort in the area where my lump was removed. Had a lot of radiation down there as had spread to lymph nodes, but been clear all this...
Hi I had surgery to remove my upper vulva and clitoris along with the lymph nodes at both sides. Cancer had not been detected in the nodes but my surgeon decided it was best to take them out now rather than me having to go back later. I am in so much...
Hi so its 6 months since my surgery. All seems to be going well and healing nicely. So the positives, at this moment they say they have removed all the cancer and I don't have any signs of Lymphoedema. The negatives, well it could come back and I...
Hello. I just got diagnosed with VIN3 and had surgery a week ago. i had a wide local incision of left labia and down to perineum. It is awful. My margins are positive. What have others done next? I am 48 years old and have already gone through menopause...
Hi xx i was diagnosed with stage 3c vulvar cancer in February , I’ve had surgery in April aswell as having all my lymph nodes from my ground removed as the cancer has spread! Now on fay 18 of 25 radiotherapy sessions and feeling tired and sore! I...
Just been to see Dr. Not good news I know I have vulva cancer had 3 lots of chemo and had more scans and biopsy so just been back to sort out next steps or so i thought, but no, more bad news. Been told something on my lung so got to have biopsy on that...
Hi, does anyone have a go to cream / ointments to treat the vulva skin? My skin is so sore I have ulcer like sores and a change to the anatomy everything is tight and swollen. I'm on gabapentin for pain but its not working, I can't sit or walk it feels...
Hi everyone I was diagnosed just over a week ago and awaiting mri and to see consultant I been so calm apart from first two days I don’t eat and was being sick my son has been away with college he has special needs and today I have been emotional wreck...
Hi, I had surgery for vulva cancer 7 years ago! Very scary but had put it behind me as surgeon said he expected it to be a one off! Fast forward 7 years and I had it reoccurring so yet another wide local incision and sentinel lymph nodes removed, follow...
Hi my mum was diagnosed with vulval cancer august 2021 for the 3rd time. The consultant advised that due to the size of the tumor and how aggressive it was that surgery was not an option this time. My mum was given 7 weeks of radiotherapy and chemotherapy...
