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Hello l am new to this group. I have so many questions. I have had a biopsy and after I have suffered with pain in my lower back in my hips and felt like I was giving birth at time's. Has anyone else experienced this . I am going to have surgery on the...
Hi all vulvectomy warriors, I would like to know how you got on with urinating after this op I've had a few accidents! I don't feel a strong urge to go to the toilet and this morning got out of bed and peed myself. The surgeon said to me things will...
Hi all, I have just received the news that I must have an operation for Vin3. The operation will go right back to the perineum. However, the anesthetist was not in favour of my going under anesthetic. Reasons given: Age (74) smoker and sero positive...
Hello, I am new here - supporting my mum who was diagnosed with Vulval lichen sclerosus and Vulval Cancer pre Christmas. Mum had a small surgery to remove lesions in January, but is going into Queen Charlotte's and Chelsea Hospital tomorrow morning...
Hi I'm new to group .have had cancer before but never felt so low and drained can't stop crying pain in ankles and swollen had enough.
Hi I'm a 54 year old woman who has delt with the pain of chronic lichen Sclerosis, for years. I noticed changes in my Vulva around summer 2022 just thought my lichen sclerosis was really getting worse and playing up I tried to get in touch with my dermatologist...
Hi, I was diagnosed with VIN last March, treatment didn't work. Had an op to remove it and from that was diagnosed with vulval cancer. Had another op in January and lymph node biopsy and found out this week that it had spread to lymph nodes and now...
Hi everyone. Daughter aged 44 was diagnosed in October 2021 had surgery, chemo and radiotherapy and MRI and PET scans were clear. She has just had regular checkups with her Oncologist since then but has only just had her first post-op checkup with her...
Hi, just been diagnosed after having day surgery on 10 Jan to remove a lump and leathery inner labia. Had a MRI yesterday and CT scan today. Been referred to University College Hospital, London for treatment and told that I will hear from them in 4-6...
I am due to go in hospital (castle Hill) to have a vulvar cancer removed and lymph glands in both grions I am terrified, I suffer from agrophobia and panic attacks, any advice please x
