Mum having Vulvectomy tomorrow - what helped you the most post op?

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Hello, I am new here - supporting my mum who was diagnosed with Vulval lichen sclerosus and Vulval Cancer pre Christmas.

Mum had a small surgery to remove lesions in January, but is going into Queen Charlotte's and Chelsea Hospital tomorrow morning for a vulvectomy. Will also be taking lymph node on one side.

She is, of course, a little scared and anxious about the procedure, but is managing to keep as positive a mindset as she can (so many jokes!). She lives alone, so my sister has moved in to help when she is discharged and I am also on hand to help out.

Both my sister and I are a little anxious about what is to come. I think its a case of not really knowing how she'll be, what she'll need, and our imaginations running wild, but we are ready to support her anyway we can.

From what I have read in posts on this group - which have been a great comfort! - the physical side of healing isn't too bad, but I have always had some concern over the impact it may have on her mentally. 

What I would love to hear is things that helped you or your loved ones who had the same surgery, little or big things that made a difference to recovery.

Thanks in advance Slight smile

  • Hi  ,

    I am sorry not to have replied sooner, I haven’t been on here for a couple of days.

    I hope your mums surgery went well? How is she doing now? 

    It sounds as though your mum has a great support network between you and your sister. For me that would be one of the most important things. In addition to plenty of support the things I found helpful were:

    • loose clothing
    • something to rinse the area during/after toileting
    • pain relief- take some home to be sure you’re mum is covered if needed
    • plenty to occupy the mind whilst resting- books, word searches, colouring etc 
    • lots of rest! Doing too much too soon can slow recovery 
    • quick and easy foods unless someone is able to cook for her. 

    Plenty of self-care for yourself and your sister too. It can be tough when a loved one is struggling and you’ll have your own worries and concerns too. It’s easy to forget ourselves when someone else needs us. 

    Message any time if you have any questions or would like to chat. 

    Vulval cancer warrior xx