Vulva cancer

Hi Angel27,

Welcome to the online community, although I’m sorry you find yourself here. 

I haven’t experienced the symptoms you speak of. Mine was a white lesion on my vulva that was very itchy and then later started burning. 

Happy to answer any questions if I’m able to. 

Good luck with your surgery. I am here if you want to chat at any point. 

Take care,

 Dearest  warrior    Thank you for your reply, I don't understand the pain I am in, I  am going to demand a MRA scan as I  haven't had one yet and I would have thought that was the first thing,  did anyone else experience this ?

Hi Angel27,

It must be difficult to be in pain and not understand the cause. 

I can only speak for myself, but yes I did have an MRI. It was after my first surgery. They thought I had VIN3, but when it come back as cancer they done an MRI. It is worth requesting one as at best it may help to put your mind at rest. 

Hiya Angel27, can I ask are having general aesthetic? I've been diagnosed with VIN3 and agreed to trial cream and if that isn't successful then will need surgery. I'm petrified of being put to sleep xx

Hi, 

Im just awaiting a biopsy for possible vulval cancer. Im only 30 - HPV for 3 years now - just had another smear to see where I'm at but likely will need another colposcopy. 

Mine started as a little mole type looking thing which has slowly gotten bigger - burning/itchy and always very dry down there even though I have alot of discharge. Sex is painful, night sweats are hurrendous and I've been unwell with various other things recently. I've been to a sexual health clinic who tested for warts and they advised its nothing STI related. 

I feel really anxious and just want the biopsy over with :( xx

Morning sorry to hear what your going through. I have vulva cancer I realised something was wrong when I kept getting water infections had enough of antibiotics so told them I know something is wrong I was right .I have had chemotherapy 6 in total .so still early days for me .I know waiting game is hard but please stay strong and positive x

Thank you for replying to me.

im sorry to hear you have been diagnosed :-( 

The waiting game is awful, wish I had a magic wand I really do. Have they said how much treatment you have to have??

xx 

My treatment finished last year I had 6 sessions of chemo CT scan showed its stayed the same which is a good thing.Dont know about you but your mind is in overdrive thinking the worse .But please stay positive I know it's easy said than done but you will be surprised where you get the strength from xx

Morning think you have had your treatment. But being put to sleep you don't know anything everybody different  it didn't bother me at all sorry for late reply but I hope your OK xx