People of any background, gender identity or sexual orientation etc can be diagnosed with cancer. Please be welcoming and supportive when talking to others.
We keep this a safe space for everyone. To find out more, take a look at our Community Guidelines.
7 weeks since WLE. This week I needed to get up and about, can't remember if I mentioned my letter from NHS saying I have CIN3 too, now have to wait for consultant appointment for that too. Visited GP 2 days back to discuss badly phrased letter...
Hi everyone! Newbie here, just joined after an appt with a nurse practitioner at my GP practice yesterday for what I thought was persistent Thrush! I was 60 last September and for the last 4 weeks have been experiencing intense itching, burning (although...
Awaiting biopsy results at the moment because I have 3 ulcers and patches of red on one side of my vulva. I've had vaginal cancer that had spread to vulva 2 years ago which was treated successfully thank goodness. Obviously, I’m anxious about the...
New here. Just awaiting WLE next month. Totally terrified. At work now, but going to catch up with all the posts on this "rare" condition later. Seems so little available support or understanding out there, aside from others with condition. Happy...
Help !! Anyone have any ideas of how to stop the itchy , crawling feeling in my vulva. I have VIN 3 and due for operation on the 12th may, but could do with some relief. Any advice would be really appreciated, I'm washing in warm water only , and using...
I have advice.just joined. I had surgery in February to remove a cyst in groin. I am now in 2nd week of radiotherapy and wonder what side effects I will get. I am being admitted to hospital for last 2 weeks of treatment why I do not know. Can anyone help...
Hi all, Not sure really how to phrase this, but here goes! How do you manage using tampons following vulval surgery? I had 2 surgeries in 2021 and had to stop using the coil following the cancer diagnosis / surgery. (My cancer is hormones receptive...
I was diagnosed with VIN3 cancer cells 1mth ago. I have had my pre op and now have my operation date 4 wks wait. I had to stop taking my HRT ,which is worrying ,as I feel my head is spinning out of control know. What am I going to be like in 4 weeks ...
Hi, has anyone had some or all lymph nodes removed. What was the outcome. I'm 9 weeks post surgery, got problems, waiting for a referral to the lymphadema clinic.
UPDATE: heard from consultants secretary today and I have a follow up appointment on 14 May to discuss surgery. Can't believe it's still such a long wait. I've asked for a sooner appointment if there are any cancellations. My initial appointment with...
