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All quiet on here? Is it really so rare? Or just so private? 18 days to go to my WLE. No less frightened and still feeling very alone. I've even started hypnotherapy to help me sleep and for anxiety. Wondering if I'm just too needy? Never really...
I have my first post excision appointment coming up I'm pretty sure I require further treatment as I been itching,White lesions Old and new appearing. Are there important questions I need to ask ? I had Vin 2 and 3 excised with the latter on Fourchette...
I’m not exactly sure how to start this.. for quite a few months now I’ve been dealing with pain and just feeling run down. I’ve also have been having flare ups of pain to where I can’t walk and it feels like I’m giving birth followed by being sick and...
Can you have gas and air during your laser treatment? I'm not sure if this is what my treatment is or it's a operation to remove infected area. I will find out Thursday 3rd April 2025. I so scared and worried over which treatment it will be. I think...
Hello ladies, Firstly I am hoping joining here is unnecessary but I am in a state. Have had itching for around 6 weeks thought maybe soap or washing liquid so changed both. Tried washing with just water, nothing helps I wake up at night scratching....
Hi. Has anyone who has had a full vulvectomy had that area stitched together, so you just have the opening of the vagina. Also has anyone had the urethra moved. Thanks
Hi everyone, I'm new to the group, just received my results today. My biopsy has been sent to Preston for further diagnosis and to have a treatment plan. I'm so scared
Hello everyone, I am 64 and was diagnosed with EMPD of the Vulva in October 2024 and had my first surgery in January this year. I was interested to read that many EMPD patients have been treated with Immiquod and similar rather than surgery. Im a Brit...
Hello after 2 years of extensive itching and being treated for lichen sclerosis. Dec 2025 I was biopsies and diagnosed with vulvar cancer. Feb 28 I had the vulvectomy surgery and lymph node dissection. Healing now and waiting on results.
Good morning, I have been on my VIN journey for 4yrs, had WLE for VIN 3, regular checkups bopped between VIn 1 and clear. Have also had Dermovate cream treatment, However Last Wednesday had further biopsies under a general and found out yesterday I...
