VIN3 Surgery

Hi Redlingua93, 

Thanks for sharing your story. This group has helped me over the last  4 months. I was also diagnosed with VIN 3 in March. I had a WLE and I’m using the cream as the margins are positive. I have another procedure on Wednesday to see if I have AIN. Also have another area of concern. It’s a horrible condition to have and I’m really struggling with it.  It’s important you get the opportunity to speak to him again. It’s helpful to write your questions down. I keep a book by my bed as thats when the questions will come! You could try asking some of your questions on here or read previous comments it might help. Take care Jane45 xx

Hi Jane45,

Thank you for your reply. Hope the cream is going okay for you and hope your procedure for AIN goes okay. If you don't mind me asking - which procedure is that?

I was told by the gynaecologist who did my biopsies that I probably had AIN too. Then the vulva medicine specialist I saw in April said the same and when I asked how it should be treated, like who I should see, she said technically a general surgeon but her gynaecological team have overseen most patients with AIN and kept an eye on things there and Aldara can be used there. 

But when I look online about AIN it says about having an internal examination to make sure that it's not on the inside of the rectum. I have similar warty lesions to those on my vulva on the skin right by the opening and was praying that if it is AIN it's not gone inwards. I regularly have blood on toilet paper when I wipe. 

Thanks once again xx

Hi,

I’m having a anoscopy basically a camera inside the anus. The consultant told me that they would have a look and they will insert a dye. They may take biopsies. I’ve read if there are areas of concern they can treat with the cream or laser. Where are you living? This hospital is in London it specialises in AIN and VIN. 
Xx

I forgot to mention the HPV vaccine and boosting your immune system can also help. Let’s face it we will try anything when we are going through a crap time. I’m waiting for my GP to get back to me regarding the vaccine if this fails I’ll have to look at getting it done in the private sector  xx

I felt the same way, it was horrible. I’m fine now except for a very dark mole I recently found. I really felt it caused me ptsd because the surgeon was awful. Go with your gut and don’t worry, I am always here to talk I went off a couple years ago after surgery but this group is the best and I would be happy to talk on phone. Xx

I just seen the Gynaecologist as I thought that something wasn't right 

Been told that it's the scaring from having a radical vulvatomy

I do have what I thought was warts but back in June had a biopsy & it's a cyst so don't think it's a warts also sometimes it can be a scaring I had my operation back January 2018 & I didn’t think that it was that as its only started in the last few months or so