hi, im new to this. I’ve had secondary metastasis from thyroid cancer removed from skull and brain. Is anyone here living with large craniectomy? I am living with a hole the size of my hand in my skull and what they call a “parenchymal hernia”. ...
Hi there, Im new to this. Have stage 4 Poorly Differentiated Thyroid with bone and brain mets (brain and skull net removed successfully . Due for radioiodibe therapy in 10 days. is anyone currently on a low iodine diet(LID)? Does anyone here have...
Hi all, I had a straightforward MTC diagnosis followed by a total thyroidectomy in 2017. After the op a tiny papillary lump was found on the thyroid. My calcitonin levels have been low but slowly rising at each blood test and my consultant confirmed...
Hi im new here, only had a diagnosis Tuesday I had a lump on my thyroid so they removed one half of thyroid and tested, devastated when told was cancerous so now going bk in hospital on 13th May for rest of thyroid removal, my worry is how do I know...
Hi all, it's only 4 days after my op and I am so up and down, shocked at how little I can do, yesterday I started to feel brighter then came crashing down, is this my thyroid that's left packing in? I feel like I left the hospital with no information...
Hi everyone, this is my first time joining a discussion group so all new to me! I’m having RAI next week and was just wondering what to expect..as in how will I feel during and after treatment? Also I was told I will be in hospital from Tuesday til Friday...
Hi all, Ive recently been diagnosed with papillary Thyroid cancer after having my right thyroid gland removed just over 3 weeks ago and I am now due to go back into surgery in just over 2 weeks to have the rest of my thyroid gland removed. After this...
Hello, I'm new here! I don't really know what to expect, or what I actually want from being on here.. I was diagnosed with stage 3 papillary thyroid cancer in 2012 (I was 22 at the time) I had a total thyroidectomy and 3 rounds of radioactive iodine treatment...
Good morning Joined this group as my mum has tall cell thyroid cancer, unfortunately for my lovely mum its now spread and she has between 6/9 months to live, just wondering if anyone else is in the same position xx
Hi everyone, I'm new to this forum but wish I'd joined much earlier! I've been ignoring support options for some reason (denial?) but now feel like I'd very much like to connect with others on a similar journey. A friend spotted the lump in my neck in...
