Just saying hello...

Hi, im new to this aswell, found a lump at side of my neck aug 22, got in drs oct 22, ultrasound dec22, the lump was nothing but they checked the whole of my neck where 3 suspected nodules was foundstraight lots of biopsies, had to have whole of thyroid removed to see if they was cancerous, surgery 6/3/23, was told 30/3/23 all 3 was cancerous and some cancer cells in lymph nodes,so they was reved aswell, just waiting to hear from oncologist and a date for radiation iodine. Still aint took it all in, think its more of coming out with something else …. Soooo glad i went… shocked 45yr old

Hi Both, I am at an earlier stage than you both, just getting over surgery for a partial thyroidectomy and neck dissection last week and waiting for results, I think I am still in denial over the whole thing.  Feeling lucky it's been found but apprehensive for the future, think life won't ever be quite the same.  So nice to be in touch with people going through the same.

I too feel apprehensive going forward about thyroid meds and if getting all that right, it's all a bit of a mine field.

I am assuming the denial will end soon and it will all become just a part of our lives

Sending heartfelt hugs to you all, Vicky

Hay, id say my emotions are all over, aint really cried tho, don't think id stop and tbh, no matter what i say or do, it wont change anything, i could of just had half removed, but they advised to have the whole removed as if 1 side was cancer, then id have to have the other side done at a later date, glad tho i had the whole of it out as it was cancer, 2 one side and 1 on the other, 

im waiting till after my hols b4 i have radiation iondine, think that scares me the most , ive  dr googled and appara theres 4 cancers i can get from having it, but it’s something that needs to be confirmed from oncologist 

sarah

Hi Sarah

I wish they had just told me what to do, I went for the half in the hope the other half would work but now after the shock of surgery wonder if I would have been wiser to have the whole out.  I find out next week if they have decided I will need the rest out.  Making decisions myself and feeling so unprepared for this has been a tough one, hard to imagine just a couple of months ago I did not even know you could get thyroid cancer.

Keep reminding myself, this is all very treatable!

X

I'm so glad you've shared your stories too. It feels amazing to know we're not alone in this. The RAI was ok actually. I think I'd rather have it than not, even though there are risks. I've just had distance restrictions lifted today which means I can hug my kids again!! 

It's totally treatable but I think I was being hard on myself, expecting me to be ok with the whole thing, because it's treatable. It's still cancer. Still scary and still life changing, and I think getting in touch with you lovely people has been a step towards me accepting all of that. 

Good luck with the next steps. Stay in touch. 

Angela x

I am so with you, the cancer word so much more scary than anything else, you feel in a total different category than if you just had a thyroid issue

Glad your through it now, the check ups are always going to be at the back of our minds but we are all lucky it's been found and we can have treatment and from now on we will be regularly checked I assume

Best wishes, Vicky