Joined this group as my mum has tall cell thyroid cancer, unfortunately for my lovely mum its now spread and she has between 6/9 months to live, just wondering if anyone else is in the same position xx
Hi, I am just a randomer like you, just recovering from my operation to remove my cancer and waiting to hear if I will need more surgery. I am so sorry to hear about your mum, cancer is really rubbish and such a tough diagnosis for you both to cope with. I had not heard of that type of cancer, just a few weeks ago I did not even realise there were different types of cancer. Hopefully someone on here will know a bit about what your mum will expect, I have found it hard to find information, my surgeon keeps saying let me worry about that, but I want to know what to expect so I can prepare myself.
I hope you have lots of people you can talk too, saying my worries out load somehow helps me to process them
Firstly I feel the need to send you a virtual hug xx
Thank you so much for your reply. Im so sorry to hear you have the dreaded C word. My Mum is the first person who ive been close to who is going through Cancer and im surprised what little information there is on line, its just the same old story 'it affects people in different ways and no one seems to have any answers' I thought the worst thing was the doctors telling us Mum had cancer but no one prepares you for the bits in the middle, the waiting on results, the hospital visits, the constant worry of it returning, this is worse than the actual cancer. If you don't mind me asking and hope i'm not intruding but is it thyroid cancer you have?
Hi Karen, It is the waiting! I am so with you as right now I am already anticipating the next results and praying they will be positive. I have papillary thyroid cancer and decided to opt for a partial thyroidectomy which is now looking like a bad choice but I was hoping to save whatever might still work. All i really wanted was for the surgeon to tell me what to do.
Thank you for the hug, I need that right now, I have never had surgery before and am shocked at how weak and tearful I am.
It's all such a rollercoaster of emotions as you say, every time you get a call, appointment or letter your hopes and fears all rise to the surface. You are a good reminder that it's not just me going through this, it's all the people in my life and when I am down I think what would be much worse would be if this was happening to one of my children, I would find that harder than it happening to me.
Your mum has you and sounds like you are being amazing, don't forget to be kind to yourself too
Sounds like you have been through the mill. I dont know if you was told the same but originally when mum was diagnosed 20 months ago, her doctor told her if she was going to get cancer thyroid cancer was the one to get as survival rates are so high, most people have their thyroid removed, go on thyroxin and live a normal life. My mum had her full thyroid removed and ended up with a traci and feeding tube, which we didnt plan for and she said it was worse than the cancer. I prey that you are one of the lucky ones as no one deserves this. Please keep in touch and let me know how you get on, I feel like I could be a thyroid specialist now lol. I am being kind and nice to myself as I know we have much worse ahead, thank you so much once again for reaching out and take take of yourself sweetie xx
So sorry to hear about your mum, it must be very hard for you and your family. Although I am not in the same position as your mum Kags123 I have 60% Tall Cell Variant of Papillary Cancer, had a full TT and central and rh side neck dissection. My vocal cord was damaged by the cancer nodule prior to my operation and I was told I was high risk for tracheostomy which would have been my worse nightmare, so I really feel for your mum. I guess I was lucky and the operation went well. However my voice has been worse since the op (it was fine before) and I am waiting for an operation to try and bridge the gap as my vocal cords do not meet and causing me a few issues. I had RAI and had my follow up with my Oncologist last week, and apparently a nodule in my lung which was very tiny, has now grown to 2.5 cms x 1.9 cms and I have 2 more tiny ones now, so they want to do a lung biopsy to make sure it is thyroid cells or not. If it is they have said I should have another round of RAI at a higher dose.
