Thyroid Cancer - Secondary Brain Met - Living with Craniectomy - exercise

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hi,

im new to this.  I’ve had secondary metastasis from thyroid cancer removed from skull and brain.  Is anyone here living with large craniectomy?  I am living with a hole the size of my hand in my skull and what they call a “parenchymal hernia”.


 I was very active before this all kicked off and wonder what exercise people with similar condition as me are finding suitable?

any advice much appreciated.  Thanks.

  • Hello again,

    What you describe is very unusual and I fear the answer to whether anybody here in the thyroid group is living with what you describe is very probably 'No'.

    I would suggest thought that you might find people in the Brain cancer groups who may be able to offer advice on living with a hole in your skull.

    We try to help everybody, but your situation is not something I've come across and I've been in the thyroid group for nearly 13 years.

    Best wishes

    Barbara

    “Scars are tattoos with better stories.” – Anonymous

  • Hi Barbara,

    thanks for taking the time to reply.  It’s much as I suspected.  I fear I am 1 in a million!!!

    I have already signed up to brain and bone cancer forums.  No luck there either!

    hey ho!  I’ll have to be the trail blazer!!!Joy

    thanks again.