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Hi everyone. My name is Lisa (my adorable dog is Jake!). I was diagnosed 2 weeks ago with Synovial Sarcoma large tumour in top of right leg. Got first appointment tomorrow miles away from my home (it’s in Stanmore) so feeling very nervous. Unfortunately...
Hi everyone, it's Megan here from the Online Community team. You may have already seen we have posted the ' Catching up with the Soft tissue sarcoma form' blog which is highlighting some of the recent discussions here in this group. It's lovely to see...
Hi everyone, I hope you don't mind me posting here today - it's Rachel from the Community team. To support Sarcoma awareness month this July, one of our Cancer Information Specialists Paul has put together a blog all about what Sarcoma is, signs and...
After waiting a year I finally had a small lump from the upper of my left foot removed in August. I'd had the lump for a few years but it was finally removed because it was causing some pains, it was suspected to be a ganglion pressing on nerves which...
Hi my husband has had a soft tissue sarcoma removed from his back 30 days of radiotherapy any advice on going on holiday abroad?
So Hello I have recently undergone a radical mastectomy following diagnosis of a high grade angiosarcoma, caused by the radiotherapy I had 7 years ago for breast cancer. Allbern a bit of a shock as I am sure you can all relate to. Was getting on with...
Hi, i was diagnosed with GIST last may and have been taking Imatinib since then but last week i had to go for a breast exam which ended up with me having a mammogram an ultrasound and then having biopsies on two lumps found under each of my nipples so...
Anyone else here been diagnosed with Low grade endometrial stromal sarcoma?
Hi everyone, Hope you are all feeling well. I’ve just recently been diagnosed with sarcoma. I’ve yet to speak to my MDT team. I am 31, married with a 2 year old. Back in November I started having stomach pains. Everyone presumed it was gallstones...
My husband has sarcoma. Has been on various treatments. Now on a drug, Selinexor, permanently it appears. He had a pituitary op in 1988 and that affects frequency of weeing. Now he is up as many as 8 or more times in the night. No-one seems to know what...
