Has anybody changed their diet since diagnosis of LGESS?

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Wave everyone.

I was diagnosed with LGESS earlier this year. Subsequently joints are now aching, from stopping all hrt, no tubes or ovaries either, going for a bone density scan first before being prescribed medication, just wondering if any one has changed their diet since their diagnosis ? I'm looking at plant based and dairy free.

  • Hi 

    Sorry nobody replied earlier; one of the issues on here can be raising issues around a specific sub-type of sarcoma can end up missing all our friends.

    Janice, my wife, has Leiomyosarcoma and takes Letrezole to help shut down her remaining ovary - there is a concern her cancer may be responsive to oestrogen but of course this is like a chemical menopause and there have been debates on here about different brands of the same medicine.

    There is a lot of discussion around cancer and diet including here but perhaps the most important thing of all is that we keep our oncology team in the loop as to what we are doing; this can be especially true if we are taking medication.

    <<hugs>>

    Steve

    Community Champion Badge

  • Hi Kindheart, 

    I was diagnosed in April of 2022 after surgery for fibroids. Fortunately, a gynecologist oncologist performed my surgery and was able to remove uterus, ovaries, fallopian tubes. I did 28 rounds of pelvic radiation and am now on letrozole for 10 years. I am completely revamping my life and diet. I had already eliminated all dairy as it was making me feel less than, but I'm also switching to plant based. I'm embracing a more Japanese-style meal plan. My grandmother is Japanese so I've had a lot of help with the transition. I eat veggies with every meal. I have replaced chicken with more free-range fish servings. I'm using this time to learn more about the Japanese culture as well.