Confused.com

Hi,

I’m sorry you and your child are going through this- having to wait such a long time to be seen must be extremely difficult.

I’m not completely sure, but I think all sarcomas are cancerous. You can get types of soft tissue tumours that are benign but a sarcoma is a malignant type of tumour.

That may seem really daunting given you’ve been referred to a sarcoma clinic but most lumps and bumps do end up being benign.

Is the sarcoma clinic referral to talk through the possible diagnosis? I don’t know if this is for everyone, but before I was diagnosed I had to have a CT and biopsy done first. Is there anyone you can contact at the hospital or your doctors to find out exactly what’s happening? It’d be a pain to have to wait a month to be seen in clinic only to be told you have to wait another month for further tests.

Don’t assume the worst. I know it’s easier said than done but you’ll gain nothing from all the worrying. It’s best to try and stay optimistic and refrain from googling anything until you’ve been seen.

I hope this helps and I wish you and your child lots of luck.

Hi when I was waiting the sarcoma surgeon said some sarcomas are benign...like solitary fibrous tumour. I think that's why they like to biopsy them before intervention. Waiting is hard. I rang sarcoma UK whilst waiting. They were able to explain terminology, what will happen next and possibilities. I found that helpful in the uncertain period. 

Wishing you and your child all the best going forward x