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Hi, I don't now think I am on the correct forum but I will carry on anyway. My husband was diagnosed two years ago with a Spindle Cell Sarcoma in his stomach which was inoperable due to being to close to many blood vessels. He had one series of chemo...
Hi all, I am still waiting for my final dx for soft tissue sarcoma and cannot work out or even find out what is taking so long? I just wondered if anyone else had waited as long as me from first biopsy? Or actually if this is normal and to just dig deep...
Hi, I was diagnosed last yr, June 22, LMS-tumor in thigh 3mm with Metastatis in pelvis. I had R'therapy & surgery on both sites in Nov; followed by clear PET scan Jan 2023 I was elated to say least. However June 23 PET showed nodule in lung, which has...
Hi all. Found out today i have a stomach GIST. But still waiting on genetic typing for final diagnosis and treatment plan. Been 2 weeks since biopsy. Wait is driving me mad!
Hi everyone. I have a recently diagnosed wild type (sdh deficient) gist with liver mets and would love to speak to anyone else with similar. I'm planning to start a blog to help others in the future.
I can’t believe I am writing in this forum, I don’t know about anyone else but I feel like i’m having an out of body experience and I really struggle to say out loud ‘my baby has cancer’ - even typing it out now feels surreal, like it shouldn’t be happening...
Hi, I'm new! I went to see the sarcoma nurse today but to be perfectly honest I think I turned her out after she said Mets!!!! It was exactly the news I didnt want to hear. So, primary tumour is a large lump on my posterior thigh. Tumour is wrapped...
Hi, is there anyone out there with radiotherapy induced sarcoma? What was your diagnosis. How has the surgery worked? I had a radical mastectomy yesterday for a stage 2 sarcoma with a fantastic surgeon at The Royal Marsden. I've been advised there...
Hey all! I got back from my biopsy today, suspected Sarcoma of some kind, approx 7cm long in my thigh, which by my reckoning puts me in potential Stage 3 territory, which is obviously concerning to me, though I am still waiting for a definitive diagnosis...
hello all new here was diagnosed in august 2023 with spindle cell sarcoma (high grade)- I have had surgery and they have removed the left jaw, currently waiting pathology results then plan is to have chemo- has anyone got experience with this type...
