Newbie with diagnosis of liposarcoma

Hi Loopy129 and welcome to our special club on here - my wife has Leiomyosarcoma with a generous dose of mets in her lungs - two loads of chemotherapy though sent things to sleep - and we have been living with cancer now for over 10 years.

Messing about with the sciatic nerve - sounds very uncomfortable - don't envy you that one.

PET scans are very similar to CT scans except they inject a radio tracer - takes a bit longer because this has to circulate around the body and find things that take up more energy than most - often cancer cells. Janice's PET-CT scans make her lungs look a little like a Christmas tree - all lit up. 

As sarcoma is rather rare it is normal to see a specialist in this area - we are lucky to live near Oxford which is one of the specialist centres and so seems like your doctors are on the ball in this.

Don't know it you had anyone with you for your appointment - often a friend taking notes can be really helpful.

<<hugs>>

Steve

I did take a friend - my bff and next door neighbour.  I'm a single Mum so my circle of friends is precious.

It's good to hear from someone that is living with cancer 10 years on.  I think my biggest worry is seeing my kids grow up (though my son is 18 this year, my daughter is only 12).

I'm actually a nurse but the experience on the other side is rather different!  I just heard noise after my nurse said Mets.  I'm gradually wrapping my head around it now.

PET scan done and diagnosis is a de differentiated liposarcoma as my primary.  PET scan also flagged areas on my spine, femur and bowel so I get more tests YAY!!!  Booked in for full spine MRI on Thursday and oncology in Liverpool on Friday.  I'll also need a colonoscopy (fun () and a bone biopsy as they arent convinced the bony areas are related to my liposarcoma.  My breasts and ovaries are clear so that's some good news at least.

Just itching to start treatment journey but they are planning radiotherapy on my thigh to try relieve the pressure on my sciatic nerve.

Hi loopy129 I was diagnosed with myxoid liposarcoma in April I was transferred to Liverpool’s clatterbridge cancer centre from my local cancer Rosemere clinic as they didn’t treat it there, I have to say they were fantastic there always kept me informed they put me at ease, answered all my questions, although from my initial diagnosis all’s I wanted to do was crack on with the treatment, good luck with yours, thoughts and prayers, try and stay positive talk to people don’t keep it bottled up, remember we are all fragile and emotional ️️

I recently had a colonoscopy as a "just in case" after a big rectal bleed. I think the best I can say is that it was not as bad as I might have feared but then I did take the option of the meds and hit the gas and air quite well too.  

I'm going for mine at 12.30.  It cant be worse than the bowel prep surely?  I feel I should apologise to all the patients I encouraged to keep drinking it over the years.....vile stuff!