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Hello all, Can you possibly tell me what tests you had after you were diagnosed? Is an abdominal CT and thats all standard? Many thanks Shani
Can anyone tell me how long they waited for full histology after tumour was removed?
I'm currently 4 months pregnant. On Friday I had a ultrasound for a lump on my foot which I thought was ganglion cyst. Result came back on Monday as 'possibility of sarcoma raised.' GP said I'd get an MRI within the next two weeks but I'm really scared...
Hay, Sarcoma removed 5 weeks ago and now I've found a lump on testicle. Could this be connected? Do I need to get it checked out? Thanks
I had a total open hysterectomy including tubes and ovaries in July 2021. It was in a fibroid and due to lymphovascular space invasion it was graded 1b. In November 2022 two mets set up home in my pelvis, one on my psaos muscle and the larger one on my...
I found a lump below my knee 2 weeks ago, had the ultrasound last Friday and was referred with suspected sarcoma within 2 hours. I have a 5cm mass with a blood supply and my referral with Royal Orthopaedic is a week away and is only a telephone consultation...
Hello all, I am new hear and feeling incredibly lost! Five months ago my husband began feeling very unwell with back pain and kidney pain, blood in urine, they suspected Kidney stones and sent him off for a CT.. the Kidneys were clear for stones...
Hi there! I’ve recently been diagnosed with leiomyosarcoma. I was initially admitted to hospital with suspected appendicitis but they quickly found a large mass in my abdomen that we named “Dave” (who knows why). They weren’t sure if Dave was a fibroid...
At 9.00 am on Monday morning I am due to see an oncologist, having been referred by the consultant who told me the risk of operating on my GIST using the Whipple's procedure is too high to proceed. Today, I received a copy of the consultant's letter...
Good morning all! I'm Moy and I posted a while ago but a lot has happened since then. I have a GIST in my duodenum. Unfortunately the position of it meant I would need a Whipple procedure (may not be spelled correctly) which could take up to 8 hours...
