hi i have been diagnosed with Leiomyosarcoma - im 48 and im starting chemo on Monday - im worried, frightened and everything rolled into one. just want to find someone who has anything in common with my diagnosis
Hello there, My name is Jordan, I'm 40 and live in North London. My dear mum was diagnosed with endometrial cancer in late March last year. She had a total hysterectomy on 20th April and had a couple of readmissions to hospital post surgery but is now...
I have just been diagnosed 2 weeks ago that i have this, had a couple of months of being unwell got taken into hospital in early October with bad sepsis and was really quite ill, was in for 10 days nd they while there I had numerous ct scans and X-rays...
Hello my names Vicky, I’m 36 (diagnosed at 31). I have Leiomyosarcoma, initially in my womb which was removed but seems a little too late as it’s spread to my peritoneum. I’ve had 7 cycles of chemotherapy which ended February 2020, sadly I still haven...
Hi all I just wanted to introduce myself as I’m new here and I want some factual information as I’m pretty scared and Google isn’t helping ! I have been undergoing tests for abdominal pain for around 9 weeks. I had an ultrasound which showed 2 masses...
Good morning all, Hope you and your loved ones are all well. Been pondering for a while about posting on here as was not sure of how to go about this and what to say. I had been diagnosed with a MAFH tumour in my left calf and had the op in May 2023...
Hi all I am a 47 year old father of four (ages 6 - 12) and was diagnosed with Desmoplastic Small Round Cell Tumour in early January after having scans to determine the source of pain in my abdomen, pelvis and back. Google tells me it is a dire prognosis...
Hi. Not sure what I am doing here. My husband has a dediff liposarcoma of the abdomen. It is a 3 stone mass and fills his entire abdomen . It is due to medical negligence and has been told that he has weeks/ months to live. We have been turned down by...
I found out last week that I have a stupidly ridiculously rare type of sarcoma. Today it seems to be filtering through my head a bit more, and I'm finding all a little overwhelming, so thought I'd come and say hi, how's life treating you today, on here...
Hi, I have recently been diagnosed with ewings sarcoma, and I'm finding it extremely hard to cope with the fact that I'm basically going to die at some point, I'm so scared of leaving my family. Does anyone have any ways they could share on how they...
