Hello, I’m new to this group and have just been diagnosed with a sarcoma in my gluteus muscle . I start radiotherapy in three days time for 5 weeks . I will then have surgery to remove the tumour which will leave me with a degree of disability. ...
Back in early 2020 during a routine endoscopy a lump was found, I was told I needed an endoscopy with ultrasound for diagnosis. 3 years on and and after being told 4 times now I need this procedure I haven't had it done. In February this year following...
Just reaching out for guidance and support. In June my husband went to the doctors with a round solid lump on his forearm, he then waited 6mths for a ultrasound and the referred for MRI which was inconclusive so he was referred to a sarcoma centre, after...
Hi, I've recently been diagnosed with Leiomyosarcoma following a cyst removal that they thought was benign... it wasn't. Currently awaiting surgery on Monday for an oopharectomy and V-Y incision, as the diagnosis is so rare I have not been given any...
I've recently been diagnosed with a GIST and been told I need a total stomach removal, then two years on targeted chemotherapy. I haven't been given any information really about what it is, but the first nurse to give me my biopsy results over the phone...
Hi it’s great to see a Sarcoma chat forum. I have had a very interesting relationship with my cancer but now I’m needing some help on dealing with the latest problems. In 2012 I was diagnosed with a myoepithelial carcinoma sarcoma. The first person...
Hi all ... I'm new to the group and was diagnosed with low grade ESS in July 2020. Is there anyone in the group with the same diagnosis ? I find that being diagnosed with such a rare disease can be very lonely x
Hi I’m the beach This is the first time I am writing on this forum I thought it would help to hear from others going through similar. I was diagnosed in October 2020 with pleomorphic spindle cell sarcoma in thigh 15cm and since then things have...
Hello I'm french I registered on this forum because in France there is no on Sarcomas My wife (36 old) was diagnosed in September 2022 with a grade 2 synovial sarcoma, she has a 9cm tumor in her calf The protocol is Chimio > Radiotherapy > Operation...
Hi all i have 2 small lung mets for angio sarcoma I’ve had 10 paclitaxol chemo and had a Ct scan on Monday and have another 10 chemo to go. I am scared the chemo doesn’t work and hasn’t stabilised as I am so exhausted all the time
