Malignant Angiomatoid Fibrous Histiocytoma

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Good morning all,

Hope you and your loved ones are all well. Been pondering for a while about posting on here as was not sure of how to go about this and what to say.

I had been diagnosed with a MAFH tumour in my left calf and had the op in May 2023. Praise the mighty Lord ,the op was a success and they managed to get it all.No requirement for radiotherapy or chemotherapy. Thankfully there are no signs of metastasis or  reoccurance. I am off crutches and walking.

I am experiencing pain on the left side of my body which appears to be concentrated in my left rib cage area but this moves up and down the left side of my torso .This has been since my operation. I have informed my Oncology team and my GP. The response I get,  it takes up to 12 months for the body to adjust to the trauma. . After 12 months we can review ans see where we are.

I have come here in the hope of meeting and connecting with people who share similar experiences and getting advise

Wishing everyone on here good health !! We have to do our best to get through this. Easier said than done,  we all know, but giving up is no option!

Look forward to your responses.

  • Hi  

    Good to hear that you are clear of the cancer - I wonder if you have seen our .pages on after treatment

    In terms of pain perhaps the question I might be asking is what effect does it have on you and what you want to do.  It is my wife with the cancer (Leiomyosarcoma) where I have Ankylosing Spondylitis  - a form of arthritis. When I was diagnosed my consultant asked if I was in pain and when I said no his response was "are you sure?". My condition does flare however so perhaps he had the last laugh.

    Pain management is a whole big area of medicine in it's own right of course.

    <<hugs>>

    Steve

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