Hello, yesterday my partner of 21 years received a phone call saying the endoscopy and biopsy of his stomach,he had 10 days ago, showed he has a lump in his stomach.The nurse said it was called a GIST about the size of a 10p coin, and it would need to...
Hi all, I was diagnosed in 2014 with Retroperitoneal Liposarcoma. The Beast as I call it (due to its size) was removed with surgery along with my left kidney and part of my bowel. Then in 2018 I had a reoccurrence, once again it was removed with surgery...
Hi I was diagnosed with endometrial sarcoma 2020 just as we went into lock down. I was told it was stage 4 as it had spread in to my vagina hip and lung. I was distraught as you can imagine, I didn’t want to know how long I had but in my head it would...
everyone. I was diagnosed with LGESS earlier this year. Subsequently joints are now aching, from stopping all hrt, no tubes or ovaries either, going for a bone density scan first before being prescribed medication, just wondering if any one has changed...
After waiting a year I finally had a small lump from the upper of my left foot removed in August. I'd had the lump for a few years but it was finally removed because it was causing some pains, it was suspected to be a ganglion pressing on nerves which...
So Hello I have recently undergone a radical mastectomy following diagnosis of a high grade angiosarcoma, caused by the radiotherapy I had 7 years ago for breast cancer. Allbern a bit of a shock as I am sure you can all relate to. Was getting on with...
Hi everyone, Hope you are all feeling well. I’ve just recently been diagnosed with sarcoma. I’ve yet to speak to my MDT team. I am 31, married with a 2 year old. Back in November I started having stomach pains. Everyone presumed it was gallstones...
Hello, my dad is 78 and has had a lump on his upper arm for a number of years. No pain. He mentioned it to GP some time ago and was told (without being examined) fatty lumps are common in older people. Fast forward another year or so, he went back to...
Hello everyone, I had a stage 1 but grade 3 uterine sarcoma removed along with a radical hysterectomy in January. I’ve had 3 lots of brachial radiotherapy. It’s nearly June & yet today I am so exhausted I cannot get out of bed. When does this get better...
Hi. I was diagnosed a few years ago with sts I had 2 operations to remove large (7kg) tumours to be told, we’ve got them all. Months later I had a scan , to find multiple legions dotted around my stomach. I had chemo and they grew, to be told I was terminal...
