Hi all. Found out today i have a stomach GIST. But still waiting on genetic typing for final diagnosis and treatment plan. Been 2 weeks since biopsy. Wait is driving me mad!
Hi everyone. I have a recently diagnosed wild type (sdh deficient) gist with liver mets and would love to speak to anyone else with similar. I'm planning to start a blog to help others in the future.
I can’t believe I am writing in this forum, I don’t know about anyone else but I feel like i’m having an out of body experience and I really struggle to say out loud ‘my baby has cancer’ - even typing it out now feels surreal, like it shouldn’t be happening...
Hi, I'm new! I went to see the sarcoma nurse today but to be perfectly honest I think I turned her out after she said Mets!!!! It was exactly the news I didnt want to hear. So, primary tumour is a large lump on my posterior thigh. Tumour is wrapped...
Hey all! I got back from my biopsy today, suspected Sarcoma of some kind, approx 7cm long in my thigh, which by my reckoning puts me in potential Stage 3 territory, which is obviously concerning to me, though I am still waiting for a definitive diagnosis...
hello all new here was diagnosed in august 2023 with spindle cell sarcoma (high grade)- I have had surgery and they have removed the left jaw, currently waiting pathology results then plan is to have chemo- has anyone got experience with this type...
Hello Everyone, Yes, we are all in the same boat, but, rowing like crazy to stay afloat and reach the sunshine at the end of the journey. I was diagnosed in January 2023 after a major bleed. All of the usual tests - brilliant service with kindness - and...
My husband had an myxoid liposarcoma tumor last year he had 25 rounds of radiotherapy and surgery on his right hip we noticed it in the august 2021 after tests especially biopsy was told over the phone on 5th January 2022, may 2022 he had the surgery...
My husband was diagnosed with a soft tissue sarcoma in his calf muscle the day before his 40th in April 2007, the consultants at St James’s were great and he was operated on within a month, removing all the calf muscle. We were told everything was clear...
Hi, I’m new to online groups and posted this in the ‘new’ group but was advised this might be a better place. I’ve been under investigation for the past few weeks for suspected sarcoma. The NHS has been amazing so far but I went to get my biopsy results...
