Myxoid liposarcoma of the hip

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My husband had an myxoid liposarcoma tumor last year he had 25 rounds of radiotherapy and surgery on his right hip we noticed it in the august 2021 after tests especially biopsy was told over the phone on 5th January 2022,

may 2022 he had the surgery, with it being such a large tumor he had an open wound which took over 6 months to heal.

He has lost a lot of movement especially putting socks on I still do this for him. Cycling is no problem but can no longer run. Walking is to much also. 

now on 3 monthly checks chest X-rays, he has a lipoma on his back which came up overnight at least 2 years before sarcoma appeared. They have left this on his shoulder and has now recently had another one come up on his thigh. 
we have been told it’s a lipoma but in the muscle and I am trying not to worry to much. 
Easier to say than do Rolling eyes

he has been having memory problems for sometime now, since his diagnosis last year, he’s 49 and its hard to watch. We thankfully are open and communicate very well with each other. Which can be a blessing and sometimes not so much

going forward os one day at a time 

  • Hi  

    Sorry to hear about your husband, for me it is my wife who has Leiomyosarcoma so somewhat a different journey.

    It does get a bit of a worry when they use very similar words for quite different things - a Leiomyooma is the technical name for a fibroid and in my wife's case that is almost certainly where the sarcoma started. She also had a major infection though and like your husband came home with an open wound. I found it quite fascinating to watch as her body healed though.

    Memory problems too can be a big issue and can perhaps be overlooked by the oncology team as it is of course not their area of expertise, It is probably worth a chat with his GP if nothing else to help put your mind at rest.

    For my wife her cancer was made stable after two different lots of chemotherapy. The sarcoma has stayed that way now for 8 years and so her oncologist is saying he would be ok if she is happy to discharge to GP care. My wife says we are living with cancer but as it does not bother her and she is not bothering it we will take that as a win.

    On the movement bit I can relate since I have a form of arthritis in my spine. I was put on to a sock aid - a frame that I can put socks on inside out then push my foot through to get dressed - though I would say getting Janice to put on socks when I need is still easier. 

    As you say - one day at a time 

    <<hugs>>

    Steve

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