My husband was diagnosed with a soft tissue sarcoma in his calf muscle the day before his 40th in April 2007, the consultants at St James’s were great and he was operated on within a month, removing all the calf muscle. We were told everything was clear and there was around a 2% chance of it ever coming back. He started to become Ill in 2022 and ignored by his doctors even when he looked 9 months pregnant. Time and time again he went back, but to no avail, until he found a lump in his chest, even then they only arranged a scan of his chest, but luckily the radiographer thought something was funny and scanned his stomach, it turned out it was full of cancer. At first they thought it was PMP, but after further tests they confirmed it was Myxoid Liposarcoma. There were no words that i can say as to what we felt when not only were we were told this news, but also that it was in his bones, pelvis and spine and was terminal. The specialist said that since he was in his role he had only seen one other person in 1975 where this had come from a soft tissue Sarcoma are such a low grade, no help at all to us tbh. I have to say though, we have total respect to his specialist, who is fantastic and vey caring, a wonderful man. He’s had Chemo (Red Devil as it’s nicknamed) and is doing well since this finished at the end of March, but we know with heavy hearts that further treatment is coming and we also know the prognosis which has devastated our lives. I met my husband at 16 and am 54 now, I have no idea what to say, do or how to act or how I will carry on once the inevitable happens to be honest. Please, if anybody has this condition make sure they keep scanning you and don’t except any excuses, it’s a must xxxxx
