Inoperable Stomach Gist

Hello Bowling Stone,

Welcome to the Online Community. I hope that you find it as helpful and informative as I have done throughout my diagnosis and treatment. 

I am sorry to hear of your cancer diagnosis. It must have been a worry when they said the type you have does not respond to radiotherapy/chemotherapy or surgery. I am pleased that they were able to offer you a targeted therapy drug and I hope that the results from your scan will be positive for you. 

I am glad that you are currently feeling , can keep active and are able to remain positive. I love the way you have named your Gist- a great name too!

Good Luck for your appointment on Wednesday and please do let us know how you get on. Either way we will be here to offer support.

Jane

Hi Bowling stone,

I was told I had a GIST.  This was thankfully removed on 1st June. Unfortunately,  not all the results have come back good. I am awaiting more results in a more detailed report from The Christie but I will be going on Imatinib soon. 

You sound like a very positive person and I'm glad you are coping well on it. I hope I am the same as I feel good right now.

I wish you well and hope your results come back with positive news. 

Thank you for your good wishes and I will update ASAP.   It is an anxious wait for your results - there is nothing we ourselves can do change our situation except carry on living life as normal and being positive.  Having said that I am always positive that I am going to win the Lottery.....and my Wife has plans in place!!

Hi Bowling stone

i too have GIST, and have been living with this for the last 6 years. 

i just wanted to wish you all the very best with your treatment

Best wishes

Thank you, what treatment are you having - sounds good.

I started off on Imatinib, I took this for 4 years. When that failed to work I moved onto Sunitinib and have been on that for almost 2 years, but it appears that this is no longer working, so I’m waiting for another scan and will discuss the next option, there is another drug available, but there may also be a trial that I’m suitable for. I’ve suffered badly with the side effects, but try and do as much as I possibly can. I was 59 when I was first diagnosed and had to give up work. I will be 66 this year and enjoy spending time with family and friends and making the most of every day

Take care of yourself, so nice to hear from other people with the same cancer

Sorry just reading back I saw that you were awaiting results of your scan. I do hope all went well. 

Results have shown the Tumour is shrinking and another Scan in 3 mths...good news and all thanks to the MDT Bronglais, Aberystwyth.  Best wishes,

That’s fantastic news. I’m so pleased for you 

Great news