Do I have a soft tissue sarcoma?

Hello , welcome to the online community, I’m one of the community champions a volunteer that helps people find there way around the site, (I first came here as a metastatic melanoma patient). I’m sorry you haven’t had a reply yet from anyone in the group, I don’t know if that’s because they don’t have the experience that your looking for. I have had a hard small lump come up on my forearm a year ago the ultra sound showed it was just a cyst and it went down again a few weeks later. I obviously don’t know if that’s the case for you but my feeling is once you have had cancer you are extra vigilant and want to get things checked out. 

I wondered if you wanted to join the thyroid group I will put the link in for you to make it quicker for you if you do, there might be others who know the feeling of apprehension for other things going wrong, and you might find sharing your experience with others in that group takes your mind of waiting for the scan ? Or am I wishful thinking. 

https://community.macmillan.org.uk/cancer_types/thyroid-cancer/discussions

There is an ask a nurse section if you want to ask medical questions the links below, but you might need to just wait for the ultrasound.

https://community.macmillan.org.uk/cancer_experiences/ask_the_expert/ask_a_nurse/discussions

I hope your wait doesn’t seem to long.

Thank you for the reponse. I know I just need to be patient.  When I had my thyroid nodule discovered the doctor said it’s very rare to be thyroid cancer and it’s probably just a benign nodule. And after the biopsy he said that it would still probably come back negative for cancer and then he called me a few days later saying it was cancer. So I’m just worried about this. My PCP said she thinks it probably a benign cyst or something (not lipoma as far as she could tell). There is some rare cases of soft tissue sarcoma from tyroid metastasis but it’s very rare so I doubt that’s it. I’ll wait for my ultrasound next week before I do any more reading on it LOL 

Hi Mommymic1

I am fairly new to this too, although I notice your post is from last year. How are you getting on?

I was diagnosed with secondary bone sarcoma in October 2019 in my right hip which was aggressive, it travelled down my right femur bone. I had tripped at work, just before I was diagnosed, and suffered a pathological fracture which showed up on a bone scan which I had shortly after diagnosis. I was called into hospital the day after the orthopaedic consultant seen my bone scan in order to get a gamma nail fitted otherwise, he told me, it would break within the week. They took a biopsy during surgery to try and find  out what the primary cancer was but there was too much crushed bone and the result was inconclusive. This was November, it all happened so quickly that I sort of went into autopilot. I then had radiotherapy on my hip and femur which cleared it.

However a few weeks ago a PET scan showed that I have minute spots on both lungs, my right collarbone, both upper arms and a bit on my left pelvic bone. So they're waiting for an area to grow big enough to be able to get a biopsy. Apparently it's unusual for the primary to go unknown for this long....trust me

My Oncologist has said that I will need to get chemo but she doesn't know which type to give me until she knows what the primary is. It's so scary and I feel so down...I'm still on crutches, although I got back to driving after 5 months off with the help of physio woohoo! And my leg is getting better but VERY slowly. This lockdown makes it 10 times worse, I've been feeling quite depressed the last few weeks and the Dr has put my antidepressants up.

I've been looking on here for anyone who has secondary bone sarcoma and I can't see anyone.