Adenosarcoma (endometrial cancer)

Hi Bella x,

Thank you for reaching out on the Online Community, I'm Eliza from the Community team. I'd just like to firstly wish you a warm welcome to the Online Community, although I'm sorry to hear about your recent diagnosis of Adenosarcoma. 

I hope that you've been finding it helpful to browse the group and read other members' experiences.

If you would like to access further support, please remember you can also contact our Support Line today. Our support team are available 7 days a week, 8am-8pm on freephone 0808 808 00 00, email or live webchat. They are here to listen and help you find the right support. They’re here to chat, and they can also help with any questions you have.

If you have any questions about the Online Community or finding the right support, please feel you can reach out to the Community team over email to community@macmillan.org.uk.

Take care,

Hi Bella. I have leiomyosarcoma which was initially in a fibroid. I had a total hysterectomy including my ovaries and fallopian tubes. I was stage 1b. It has unfortunately come back in my pelvis and illiac vein. The only thing they can do is palliative chemo. Sarcomas are rare and aggressive. Please insist on three monthly scans. I was having alternate scans and chest stays so my appointment in November was an x-ray which was clear but the one in February was a CT scan which showed the two tumours. I don't want to scare you but you need to advocate for yourself.

Hi Bella 

I'm new on here too ..

Im soo sorry to hear about ur cancer . 

I have the same I have endometrial sarcoma and I'm 34 years old . I am under the Royal Marsden hospital.. ur not alone .. 

It's soo rare and soo scary   

But stay strong  

Here if u wanna chat 

All the best C