Low-dose oral vinorelbine for desmoid tumor

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Hi, does anyone have experiences on taking oral vinorelbine on low doses for treatment of desmoid tumor/desmoid fibromatosis?

I have been offered this chemo as first treatment to shrink my tumor. Dr said it will be given in low doses so side effects will be minimal. 

I want to know what to expect from people's experiences. 

  • Hi  

    Sorry nobody picked this up, when I did a search most of the links went to the lung cancer forum 

    I did find quite a few research papers using vinorelbine for desmoid tumors and from what I could see many rated the treatment as being well tolerated.

    <<hugs>>

    Steve

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