On the 17 th March 2023 I was diagnosed as having pleomorphic undifferentiated Spindle Cell Sarcoma in my left upper arm..
It took nine months to reach the diagnosis having pestered the doctors for a referral only to have a surgeon deal with my lump which was believed to be a limpoma . Whilst carrying out the procedure to remove the tumour he discovered the diagnosis was wrong. I was immediately stitched up whilst the removed sample was sent to be checked.
On the 17 May I was operated on and the tumour removed on the 24th July 2023 I commenced radiotherapy in Liverpool.
Since then I have had checks every three months which have included CT scans along with regular chest X-ray as the disease can spread to the lungs .
Just prior to Christmas a second tumour appeared in my left arm which caused obvious concern as the disease does have a habit of returning to the same area.
I had a full body CT PET scan which thankfully resulted in the tumour being diagnosed as benign .
i will celebrate three years from the operation tomorrow.
I hope my story gives those with an aggressive cancer as mine has been diagnosed confidence in the tremendous skill of the surgeons radiologists and nursing staff who bring about some amazing recoveries.
I may not been out of the woods but I have a wonderful team looking after me.
Thanks for sharing and well done for pestering in the first place. My wife's route to diagnosis was complicated and while she still has cancer as secondaries in her lung her chemotherapy managed to render it stable and she has been that way for over 10 years now.
<<hugs>>
Steve
Hi Butterflycake
The reason I piped up with my story was because there was nobody about three years ago with positive stories or if there were they didn’t share them.
I think there are more incidents of Sarcoma in the leg than in the arm . It is great that you were very quickly diagnosed and are already on a treatment plan for its removal after radiology.
I am in touch with a chap who like you has had a similar diagnosis and has just had five weeks radiology in Manchester. He is having his operation in the Sarcoma Centre at Owestry North Wales. I know of two other people both ladies who are also surviving well after treatment all in the leg.
It is a dark place when you first hear of the diagnosis it is very rare and difficult to grasp. I stick very much to MacMillan advice or Sarcoma UK 
do not going wandering around on the internet confine yourself to these two centres you will not go far wrong.
Keep active given you have two teenagers that won’t be a problem also do relaxation and breathing exercises to deal with anxiety.
Wishing you well
Roadrunner5355
