Hi all,
I wrote a post a few weeks ago regarding a lump in my finger that I've had for over 5 years. After a recent ultrasound I was referred for an MRI and then to the sarcoma team to investigate further. This was all a massive shock to me as I've had this lump such a long time and was told years ago that it was just a fatty lump. 5he only reason I went back to the doctor was because it has starting to cause some pain.
The last few weeks have been really stressful, I suffer with anxiety and the worry of this has made me quite ill. Ive not long finished my maternity leave and was due back to work but have been off sick due to such high anxiety over this.
Anyway, the nurse from the sarcoma team rang me yesterday and told me that after a multidisciplinary meeting to review my recent MRI they have concluded that it isn't worrisome. She said they think it is either a giant cell tumour which is benign or something else (she did say but I have completely forgotten how to pronounce it, but she said it was also a benign type of lump) so not a fatty lump like inwas told all those years ago. I asked if I needed a biopsy etc. and she said that they would just take it out as its causing me pain. I will hear off them regarding an appointment with a consultant to go over the procedure and then after that they will schedule a date to have it removed. I'm ofcourse releived as I was so worried about a sarcoma, but at the same time I still have anxiety that a biopsy has not been done. I'm thinking how can they be sure it's benign? I asked her this and she said they were very experienced and would knownif it had concerning features.
I could be waiting weeks/months to see the consultant and I'm just worried about leaving it for so long. I know I shouldn't Google but I've read that in rare cases a giant cell tumour can turn malignant and they also have a high occurance rate. Has anyone ever had a GCT or similar? Did you have it removed successfully? I'm also so worried a biopsy hasn't been done
Thank you x
Hi Aakr
Many on here find the time between diagnosis and any treatment as about the most difficult time. I know with Janice it was only that the doctors could not explain some of her symptoms that ended up with them doing lots and lots of tests that eventually found her Leiomyosarcoma. Fortunately for her the second chemotherapy she had ended up rendering her cancer stable and it has been that way for over 10 years now.
One thing that we had with Janice was that the doctors would compare scans that were taken some time apart, in those before treatment we could see the tumours growing and that possibly more so that a biopsy was helpful to determine something was happening.
Google can be a helpful tool but must be taken with care as not all the information is fact checked as would be the case on here or cancer research uk.
<<hugs>>
Steve
