Hello,
My dad is in his 80s and has just been diagnosed with a high grade spindle cell sarcoma. Seedlings have also spread to other parts of his body. He is struggling with the use of his arm.
Getting treatment has been a real challenge with MRIs being rejected by hospitals after being referred over a month ago, and we don't really know what might be next in terms of treatment.
I suppose I feel a bit worried about what might be to come, as the doctors won't say we are looking at palliative care, but have also asked if all his paperwork is in order and said he could get referral for the Isabel hospice team for pain management. When I asked if this meant what I thought it did bringing in a hospice org they just said oh well just for pain management. I feel like I'm getting a lot of worrying messaging without anything being said explicitly.
With this in mind I feel uncertain about what's to come, can any one share their experiences if you are elderly yourself or have elderly relatives.?
Once diagnosed what was the treatment? How effective was it ?
