Hi , I’m not sure if I belong in this group but they did put a leaflet in my pre -op pack , also referred by Sarah.
I had an appendectomy mid June ( appendix had burst and create an abscess) .
i was told on 3/7 it was cancerous and i would be referred to a specialist hospital for right helicolorectomy and HIPEC ( hot chemo wash in the abdomen ) I’ve been told it is grade 3 .
my local hospital thought the operation would be in August and it had been caught early.
To date I’ve had no treatment .
After eventually getting a date for the op of the 28/9 , it was cancelled on Thursday . The latest scans have revealed it is currently inoperable and I have to have 3 months chemo to try to shrink some of the cancer.
I have an appointment back at the local hospital on Friday (2/10) .to discuss chemotherapy.
there have been lots of tears at each delay and feelings of frustration and being let down by the system which is ultimately going to cost my life . I’m guessing lots of you have felt like this ?
Does anyone have experience of this type of cancer ?
Im seeing my original consultant on Friday , any ideas how long I will have to wait for the chemo to start .
ive read this type of cancer doesn’t always respond to chemo , so the ideal is to remove it by surgery
does anyone have any experience of going private for this - currently considering all options , I don’t think I have time to wait .
Hi
Do you know why they said you were inoperable? Was that a Consultant at The Christie in Manchester and the Basingstoke Hospital in Hampshire? I am a Christie patient and Christie Consultant arranged for a 2nd opinion at Basingstoke Hospital. The two teams work closely together.
Suggest you join the charity Pseudomyxoma Survivor private FB group as there are lots of patients who are members with lots of experience.
