Recently diagnosed Mucinous Adenocarcinoma of the appendix following an appendectomy to remove an abscess and ruptured tumour which was also attached to the bowel.

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Hello,

I am just joining today after my recent diagnosis. 
I am awaiting a referral to The Christie in Manchester and have only had one appointment post op in which I was told I had cancer. 
The wait is driving me mad with worry as I am suffering extreme bloating and pains in my side and I am convinced of mucin spread however in my recent ct scan and colonoscopy nothing was mentioned. It was noted in a referral letter that the cancer was in my peritoneum however I was not told this verbally. 
if anyone has any advice on this type of cancer and whether it is always accompanied with PMP and possible wait times/treatment options/success stories I would be very grateful. 
I am only 35 and have two young children and I am really quite scared. 
Thank you 

  • Hi there..I am a Christie patient. Surgery July 22. Have you also joined the UK charity Pseudomyxoma Survivor. Lots of members are Christie and Basingstoke patients with lots of advice and experience that they can share. Try not to overthink at this stage. Easier said than done I know but hopefully you will be contacted soon.  I was referred in March 22 and my first contact was early May 22.

  • Thank you for your response. 
    It’s good to hear from a patient who has accessed treatment at the Christie. My difficulty is the waiting and being off work in the meantime whilst waiting but we don’t have any other choice do we? Well not whilst I’m still recovering from my last surgery that’s for sure! 

  • Hi Awil1989

    How are you now, have you had your surgery?

  • Hi there,

    I've recently had my appendix removed and goblet cell adenocarcinoma was found. Apparently my margins are just about clear and there was no spread to my lymph nodes but I'm still being scheduled for surgery. The Christie are removing my ovaries and omentum as well as giving me chemo (HIPEC). They initially thought i was going to need the right side of my bowel removed. That could still be happening once they go in i suppose. It's scary but i figured if it keeps me here a bit longer, then its worth it. I feel lucky they found it at all but devastated that i have it. Its weird. 

    I'm 40 and have a 5 year old daughter. I've been struggling for years with abdomen pain and now I'm wondering how long it's even been in there? 

  • Hi there

    I am a Christie Hospital patient. Try not to overthink.....easier said than done, I know.