Hello,
I am just joining today after my recent diagnosis.
I am awaiting a referral to The Christie in Manchester and have only had one appointment post op in which I was told I had cancer.
The wait is driving me mad with worry as I am suffering extreme bloating and pains in my side and I am convinced of mucin spread however in my recent ct scan and colonoscopy nothing was mentioned. It was noted in a referral letter that the cancer was in my peritoneum however I was not told this verbally.
if anyone has any advice on this type of cancer and whether it is always accompanied with PMP and possible wait times/treatment options/success stories I would be very grateful.
I am only 35 and have two young children and I am really quite scared.
Thank you
Hi there..I am a Christie patient. Surgery July 22. Have you also joined the UK charity Pseudomyxoma Survivor. Lots of members are Christie and Basingstoke patients with lots of advice and experience that they can share. Try not to overthink at this stage. Easier said than done I know but hopefully you will be contacted soon. I was referred in March 22 and my first contact was early May 22.
