Hi all
My husband has an appointment on Sept 11th for a pre assessment before his op all been well on Sept 30th. The assessment appointment was for 8am on 11th Sept. However last week the hospital rang and said the consultant wants to see Tony on 11th to discuss his scan results before he has his assessment. I am worried that he is going to guve us bad news and therefore my hubby wont need his assessment. Perhaps I am overthinking this but i am concerned. Has anyone else had a similar experience to this ? Many thanks
Hi
This does sound a bit unusual and it's impossible for anyone (except the consultant) to know what he/she wants to discuss.
I can offer some possible reassurance in that it's usual for all scan reports to be considered by a Multi Disciplinary Team before deciding which treatment options to offer to patients. The MDT would not have given surgery as an option if it wasn't appropriate.
Being offered surgery at all can be taken as a very good sign that treatment will be "successful".
Secondly, if it's correct as you say, this discussion is to be "before" the pre-assessment, then it appears that the pre-assessment is not being cancelled, in which case neither is the surgery. So it still looks good.
In my case the urology consultant I saw before and after surgery was not the surgical consultant who carried out my operation. They weren't even in the same hospital! So I'm not clear if the "consultant" you refer to is the actual surgeon or not. If they are the surgeon, then there is a possibility that they may want to discuss some aspects of the actual surgery that might need to be changed.
As long as the surgery isn't entirely cancelled, it still looks good!
Hi
Thankyou for replying. We went to see our consultant today and bone scan clear. However MRI showed cancer spread to nearby lymph node. They wont do surgery now as they said a percentage of 1.6 spread to the lymph is more than the 1 percent required for surgery. My husband given tablets to take to reduce testerone and back in 2 weeks for injection. He is waiting now for appt with oncologist to discuss options. He has a PSA of 19 and Glleason 9. Consultant said with those results 20% of men would have a spread. I feel a bit better knowing some treatment will be started.
That is good they found that as it would seem now that the best way forward would be Hormone Treatment HT which will bring his PSA levels down and also apparently weaken the cancer cells and then radiotherapy which will treat the hole area. I do hope that this is an option for your husband and that the treatment is successful. This happened to me as was told initially that both removal and radiotherapy were an option and then when the actual radiologist looked at my MRI she changed the staging from T2 to T3 as the tumour was pushing on theback of the prostate and was bulging out so they could not confirm that the cancer had not broken out. That was 3 years ago and since hormone treatment and radiotherapy my psa has been undetectable. I think this happened because my scans and biopsies were all done at different hospitals and then the treatment carried out at another hospital - so 3 hospitals with all the results going to another hospital! Goodness knows why so I think the radiologist who looked at the MRI and the radiologist who would have taken me through treatment were different people. As it was I had decided on radiotherapy for other reasons but it was quite a shock to have the change but it doesn't seem to have made much difference to the outcome. I would far rather have radiotherapy from the outset than to have the prostate removed and then have salvage radiotherapy.
Take care of yourselves and each other and I hope everything goes well.
Des
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