Hi everyone
I promised to let the caring people who had read my last post were I was up to when I found out my results.
Here's a brief recap
I was 60 and diagnosed in Sept 2020 and went on Hormone therapy straight away
My diagnoses was T3b N1 M0 high) risk and aggresive
Gleason 4+5=9 treatable not curable
2021 I had chemotherpy followed by a rest and then Radiotherapy
after the treatment my psa remained at 0.1 undetectable until February 2025
So here goes...
In February psa went to 0.07, and throughout 2025 began to rise as the year went on-
0.23 0.28. 0.44. 0.53 and in 2026. 0.69 in February and March 2026 1.2
I had gone through two years hormone therapy from 2020 and in 2021 chemotherapy followed by radiation treatment.
Over the years my bowels became troublesome and after seeing a clinical scientist and I was diognosed by colorectal with radiation proctitis
After a recent scan my bladder shows scaring and I have to go back in a couple of weeks.
In the new year I had a psma pet scan/ct and it hadfound movement in my abdomin and neck
( I understand a spread to the neck is rare )
Today I went to the oncologist to find out my results....
Here goes again...
Turns out I have cancer in my abdomin also my bones and yes my neck.
I have to return to the oncologist in 2 weeks when I have read a book I was given on Erleada ( apalutamide )
and also talk some more.
I have four week course of Bicalutamide and an injection to take back to clinic called Triptorelin
( this I was told is for life )
Five years has passed since my original diagnosis of T3b N1 M0
I forgot to ask the consultant if this mastatic rise and spread will be T4 moving forward, the oncologist said the spread was all prostate cancer.
Still getting my head around it all, yet again
It just goes to show don't ignore low numbers and if something doesn't feel right mention it.
No doubt I will be back on fairly soon
Love to you all
Spuduknow
"you don't know how Strong you are,
until being Strong is your only choice:
Bob Marley
Hello Spuduknow
i saw your post yesterday but was out last night so didn't get chance to reply.
Your team at Christies have got your back and are on your case - although it does look like the cancer is on the move - it's still very treatable so stick with it. They have started you on a new treatment - I wish you well with it.
I did say before I went on holiday to Turkey I would meet up to take the dogs for walk and we can chew the fat! So if it's good for you drop me a private message (my message box is open - you don't need a friend request) and we can sort out a mutual time and date.
Kind regards - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
Cheers Spud (Spuduknow )
I hope it goes well for you. Just drop me a line when you are ready.
Kind regards - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
