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Hello, I don't really know where to start with this, but here it goes, sorry if I go off on a tangent! I have recently been told that I have an issue with my Pituitary gland, still getting the tests and my MRI is next week, but up to now this has...
Hi, I'm new to this forum but not to the online community as I have renal cell carcinoma which is locally advanced. I am on pembrolizumab and Lenvatinib and responding well. Treatment started late April. A few months ago I started having pain in the...
Hi I have a recent diagnosis of a TSH thyroid hormone secreting adenoma have been told its very rare which is scary in it's self. i live in Norway and the main hospital in oslo has only ever had one other type of this tumour before. So they don't have...
My mam has been diagnosed with pituitary cancer and a radiological (not biopsy) diagnosis of lung cancer. She's 85 and until three weeks ago very fit and active but then crashed physically and all of this was discovered via a subdural haematoma diagnosis...
Hello i had a Pituitary scare a couple of years ago but thankfully all was well. However my close friend has just been taken into hospital with blinding headaches and severe facial neuralgia pain and after a CT has been told she has a bulky Pituitary...
Hello, I had an MRI last September after some visual problems the scan revealed a 7mm Microadenoma. Endocrologist appointment and blood test revealed its non functioning. I am now approaching 12 months and have to return for a follow up scan to track...
Am I alone out there? I have a 19mmx16mm tumour get MRI once a year that’s it! No support I have to go it alone
Hi l am waiting for surgery which should of been March/April my daily living is awful with all the side effects l am having and l am struggling so much and feel so alone I it. I have headaches every day all day, l am either sick or feel sick , l have...
I see that Davina McCall is having her tumour removed. I hope all goes well. Anyone know how I can get mine removed? My 'specialists' are refusing to remove mine until I start going blind. I see that some people have had their's removed even though...
First timer, here! I have a macro that was found 5 years ago at 12mm, and is now 17mm and abutting the optic chiasm. I have no physical symptoms and no hormonal issues other than low "T". Surgeon says it's up to me as to when/if it gets removed. I have...
