Pituitary tumour

FormerMember
FormerMember
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Hi l am waiting for surgery which should of been March/April my daily living is awful with all the side effects l am having and l am struggling so much and feel so alone I it. 

I have headaches every day all day, l am either sick or feel sick , l have no energy l put loads of weight on and my prolactin levels are high. 

I just feel like no one understands me or what l am going through. 

I such for answers but never find them   

  • Hi  and a very warm welcome to the online community

    I'm sorry to hear that you're waiting for surgery and struggling with side effects.

    Although I didn't have the same type of cancer as you, I totally understand how upsetting this must be. However, you've come to the right place as people here do understand what it's like living with cancer.

    You say that you're searching for answers but cant' find them and I wondered if it would help if you started a new post in the group listing the questions you have.

    Sending a supportive ((hug))

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     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • FormerMember
    FormerMember

    Hi, what type of surgery are you having? I had my tumour debulked last year so can maybe answer some of your questions.

  • FormerMember
    FormerMember

    Hubby’s eyesight was getting bad fast. I told him to go to Specsavers who immediately discovered a ‘ black inconsistency’.and referred him to an Eye Specialist. One month later he was in emergency with a Pituitary Tumour that had been stretching his pituitary gland.... for 10yrs!. Up until then, he had been misdiagnosed with depression (drugs galore) and when I met him, he was obese, a chimney smoker and living on junk food. As soon as he recovered, from surgery one month later, no smoking, no junk food, He has been a marathon runner since. After 10yrs of misdiagnosis he is 95% ok..ED is the other pituitary symptom/side effect.. but a with love and support...it is 100% better