Hello, I don't really know where to start with this, but here it goes, sorry if I go off on a tangent! I have recently been told that I have an issue with my Pituitary gland, still getting the tests and my MRI is next week, but up to now this has...
Hi, I'm new to this forum but not to the online community as I have renal cell carcinoma which is locally advanced. I am on pembrolizumab and Lenvatinib and responding well. Treatment started late April. A few months ago I started having pain in the...
Hi I have a recent diagnosis of a TSH thyroid hormone secreting adenoma have been told its very rare which is scary in it's self. i live in Norway and the main hospital in oslo has only ever had one other type of this tumour before. So they don't have...
My mam has been diagnosed with pituitary cancer and a radiological (not biopsy) diagnosis of lung cancer. She's 85 and until three weeks ago very fit and active but then crashed physically and all of this was discovered via a subdural haematoma diagnosis...
Hello, I had an MRI last September after some visual problems the scan revealed a 7mm Microadenoma. Endocrologist appointment and blood test revealed its non functioning. I am now approaching 12 months and have to return for a follow up scan to track...
First timer, here! I have a macro that was found 5 years ago at 12mm, and is now 17mm and abutting the optic chiasm. I have no physical symptoms and no hormonal issues other than low "T". Surgeon says it's up to me as to when/if it gets removed. I have...
Hi Anyone here have a Pituitary tumour that’s grown into their brain? I’d really appreciate talking to someone who has gone through the same thing? I had surgery in 2020 but half of it is inoperable and has grown into temporal lobe. I’ve recently had...
Hiya ive had tbnc breast cancer had chemo and radiotherapy but wasnt feeling great, getting headaches and pressure in my head and buzzing in my head, the oncoligist sent me for a mri scan on my head , no cancer but my pituatry gland is imflamed, what...
Hi all Thought I'd introduce myself and give some history. I have been suffering with multiple symptoms for some time and have, like others in the group, come up against GPs who want to treat each symptom individually. I have always voiced my opinion...
Hi there, I´ve been struggling with this diagnosis and truly understanding what this is for almost 10 years. I kind of want to share my experiences and more importantly, find out if anyone else is having the same problems/symptoms as me. I´ve just been...
