Recently went to my GP thinking I had hernia as had felt a lump in my stomach and was referred to hernia consultant for appt just before lockdown. Had to go back to GP for something else but also mentioned to him that I hadn't heard back from the hospital but wondered if the hernia could be causing problems as had started experiencing uncomfortable bloating and occassionally finding that when waking up in the morning found that I had passed urine without any warning. He decided fortunately for me to do some further blood tests and to organise an ultra sound. My CA125 test came back raised at 113. I was immediately referred for an urgent appointment to ultrasound and gynae/oncologist. I was a bit shocked. Everything has been moving so quick as found I had an approx 30cms mass in my pelvic area and CTscan showed comng from the ovary. I had a hysterectomy in 2007, 13 years ago but had opted to leave my ovaries in. I am in the middle of my appointments now, had been told possible options would be to chemo first, surgery and chemo after as mass so large. However, when discussing CT results over the phone, was told that the team had decided on surgery first when they would also do a biopsy to see if cancer, also found a couple of suspicious lumps on my peritoneum. I haven't had much time to get my head around all this and of course have been googling, looking at all the forums etc. I feel well in myself, all my other bloods came back good and ca125 reading, because under 200 was told a grey area. I feel like I'm about 8 months pregnant and even find myself waddling like a pregnant duck, even though there is no possibility I'm pregnant !!!
Looking on this forum, have seen many people have had chemo first before surgery and some of the surgery mentioned seems to have taken a long time, 5-8hrs. Has anybody else had such a large mass or does anyone know why surgery first is sometimes the option. My head is going round and round and all I know is I want this thing out but the thought of 5-8 hours surgery petrifies me. Would appreciate anyone getting back to me.
