Raised CA125, symptomatic but normal US

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Hi,

I'm wondering if anyone was diagnosed after a clear ultrasound (only abdominal as they couldn't do the transvaginal one due to pain)? I've had two CA125 tests back, the first was 48 and two weeks later, raised to 59.

For context, I'm 31 and have a family history of various cancers. The GP can feel a lump on my lower left side of pelvis but nothing showed on the US. I'm experiencing exhaustion, unable to work, peeing at least twice per hour, bloated after only a few bites of food. All symptoms seem to point to ovarian cancer but I've also been told I'm "too young."

Currently waiting for advice from gfyanecology aas to whether to put me on the 2WW, just looking to hear others' expereince as I'm so worried,

Thank you

latchbrook 3 months ago

Hi DreamingLife and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

I’m Anne, one of the Community Champions here on the Online Community and, although I'm not a member of this group, I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.

While you're waiting for replies, it would be great if you could put something about your symptoms and tests into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

"Never regret a day in your life, good days give you happiness, bad days give you experience"

Mich56 3 months ago

Don't listen to your to young cancer doesn't have an age it can happen to anyone and any age sending hugs and hope you get results and hopefully not cancer xx

Lilac3trees 3 months ago in reply to latchbrook

Hello, as Mich56 has said, you are not too young. My CA125 was over 700 when I was diagnosed as having Ovarian cancer, speaking to my GP the CA125 can be low in some cases and you can still have Ovarian cancer. I had two US examinations and they showed nothing. It was a CT scan that picked it up. I had pain in my right groin and was told by a GP it was hip problems - the gynaecologist told me this is where my ovaries are located one on each side. If it is your right side it is also where your appendix sit’s. If they have found a lump, I would ask for a CT scan with the dye. It is a painless experience and they should be able to have a good idea what this lump is after the scan. With the CA125 a reading below 35 is classed as normal, but it can be raised due to non-cancerous conditions too. Hope this helps.

Best wishes

Kat22 27 days ago

Hi DreamingLife,

I was given an all clear result after a CT scan and then had to have an operation for a bowel obstruction 6 weeks later in A&E. The bowel obstruction was caused by the return of my cancer. My CA125 at the time of the scan was 77.

I underwent chemotherapy for the 2nd time. I haven't been offered surgery this time so the cancer remains in my body. My CA125 after chemotherapy was 26. So cancer can be present even when anything below 34 is classed as 'normal'.

I hope you get all the tests and results you need.

Take care.

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