Just have to share with people who get it how hard all the uncertainty is to deal with. CA125 results that may or may not mean something, CTs and MRIs that can’t tell the whole story, having to wait for surgery to know more. Even then, waiting after surgery for more results. It’s really such a hard and draining thing, on top of the usual emotional pain of facing a diagnosis.
Hi Lucy_ and welcome to Macmillan and the Ovarian cancer group.
I noticed that you hadn’t received a reply yet, so my reply will nudge your post to the top of discussions again and hopefully you will get some more replies.
It’s very difficult to deal with uncertainty and not knowing all the answers yet, so I do appreciate how hard it feels being in this limbo while you wait.
I didn’t have ovarian cancer myself (mine was cervical) but I am familiar with the diagnostic process of testing and scans. My situation was known before I eventually had surgery, where I did lose my whole reproductive system including ovaries amongst other things.
Can you share the type of surgery you are facing so other people might be able to help if they’ve had the same? The waiting game is tough, but I did my best to try not to focus on things I couldn’t change. Keeping busy and not looking at worst case scenarios helped me. I never went searching on Google for example, and trusted that my team had the answers, not the internet, for my particular situation.
I waited about 3 weeks for my results following surgery, and to be honest didn’t think about it. I was glad to get through my surgery successfully and was focused on recovering. My results were good, and I was glad that I hadn’t spent those 3 weeks worrying.
Have you got a date for surgery yet? I hope it’s not too long to wait. I found things easier once I knew what I was dealing with and what I needed to do next.
Sarah xx
