Neuroendocrine

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Hi everyone I was diagnosed with neuroendocrine cancer in February 21 after the removal of my gallbladder in December 2020 , it was a shock at 1st! I didn't know what was going on? had scan and was about to have the dreaded camera up and down if you know what I mean? When I asked a nurse what is this all about? She went and got the consultant and sat me down and told me I'd got cancer? I had to have the camera, then it was time to tell my wife who was sitting in the the hospital carpark we both sat in shock and a few tears, then had to wait for results and to see  consultants , the 1st told us there's nothing that could be done as where the tumors were ? But luckily the 2nd one we got to see a few days later told us that royal London had a team that would look at my case, in march I was having my small bowl removed in London, it had masterised to the liver which can't be operated on so on injections every 4 weeks, now I'm starting radiotherapy in July over 16 weeks in Essex, the net team are very excited as I'm the 1st patient to have treatment at this hospital. 

  • Hi  and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

    I'm not a member of this forum but just wanted to wish you well for your treatment and I'm sure the other members will be happy to answer any questions and share experiences with you.

    It would be great if you could put something about your diagnosis and planned treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

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