Carer of husband with net tumour

Hi Peugeot 12,

I first posted 11 months ago,I never thought I would be here now to post again, my main net in my pancreas is still stable,being controlled by sandostatin injections and hopefully my liver is the same, am waiting on latest scan for that,since then ,I now have diabetes and poly myalgia to deal with,what I wanted to say is that it is like a roller coaster,some days it scares the life out of you,knowing that you have this cancer inside you and they can’t take it out of you and as my specialist says, we are keeping it pinned in, we don’t know when it will turn around and say I don’t like this and wants to break out, that goes through my head many times a day, my specialist says I’m always very positive, the reason for this is on one occasion I met a fifteen year old child in the cancer unit, who only had a few weeks to live, which made me appreciate the time I have , a bigger window of time,I never was a big drinker and to some like your husband it is a comfort and a place to hide the mental anguish, if his nets is under control, like mine ,I would do everything I can to keep it that way, fill his time with activities that will best keep his mind from turning to drink and to think how lucky we probably are compared to other types of cancer,

Kind regards to you both.

Hi, I’m so sorry for what you’re going through. Polymyalgia on top of the net tumour, I can only imagine. Thanks so much for replying. I suppose unless you are going through the cancer journey you don’t realise what is going on in their head. I’m part of that journey and I think you’re right I need to distract him and hope he comes to terms with it, if people ever do. Seeing a 15 yr old must have an effect on you, so young all their life in front of them. You have been a good help to me by replying and I hope your good days outweigh the bad. Thank you so much and I wish you all the best. 
Hope to talk to you again on here sometime to see how your doing.