Hi everyone, I’m caring for my husband, he’s 76, very fit. Until recently! After about a year of vague but gradually worsening gastric reflux he was diagnosed with an oesophageal tumour which after a PET scan and much more pathology was re diagnosed with a Neuroendocrine carcinoma, poorly differentiated and grade 3 with a shadow on the liver and lymph nodes involved. No cure, no promises of any kind, only that if the treatment works it means more time. And that’s IF! It’s taken a few weeks but finally he starts chemotherapy tomorrow. Relieved in one way but dreading it as well. He was feeling pretty good until the last few weeks and has become more tired and stuggles with lumpy food. Amazingly he managed the local park run 2 days after Christmas.
We had never heard of this cancer, unsurprisingly because it’s so rare. It’s quite terrifying and for a month I have been all over the place trying to find information, find some hope and not be overwhelmed. Failed completely on the overwhelmed side of things. Our world is looking very different from just a month ago! My dear husband is being pretty stoic, he’s scared but holding up and putting this trust in our oncologist.
I’m so sad that he and anyone has to go through this. I just hope he copes with the chemo as well as possible. I can’t bear seeing him suffer.
I wish all of you beginning or continuing treatment the very best and am happy to talk about and share experiences if it helps .
