NET diagnosis during pandemic

Hi Kate1962  I’d like to offer you a warm welcome to the Macmillan Online Community. I’m sorry to read about your diagnosis but you’ve come to the right place to talk to other people who are in the same situation and help you get through this. When we are told it is a case of watch and wait every single little ache and pain makes us think the worst. Rest assured you've come to the right place to get support and share your concerns. 

My cancer is different, but a cancer diagnosis of any kind makes us ask lots of questions, causes confusion, stress and probably emotions we’ve never experienced before.  I see you’ve joined our Neuroendocrine cancer group, this will be a good place to connect with others making the same type of cancer journey.

It’s always helpful to others if you write a little something (or a lot) about yourself and your journey to date. You can enter it into your profile (click on your username and select “Profile”) It’s helpful to other members with a similar diagnosis who can then hopefully answer your questions. It also means that you don't have to keep writing the same thing over and over. You can amend or update it at any time. 

To find more information covering diagnosis and treatments there are pages covering most types of cancers which can be found on our Online Information and Support Section. 

The Macmillan Support Services also offer lots of information, support, financial guidance or just someone to listen. It’s free to call 0808 808 0000. Most services are available 8am to 8pm, 7 days a week. Have a look by Clicking here to see what is available and we also have our Ask an Expert section, but do allow two to three working days for replies from our expert team.

Sending you welcoming hugs B xx

Mrs BJH

MrsBJH many thanks for your welcome. Will update my profile once I get to grips with the site. All new to me and first time I have opened up to anyone about what is happening but it feels great just to get it out in the open with people who understand all the complex thoughts and anxieties 

Would be glad to hear from anyone else living under watch and wait after diagnosis. I am finding it very difficult at the moment and am constantly stressed and anxious about what may be going on in my body that I dont know about. Was diagnosed during lockdown which was a strange experience in itself. I have been told I have 1 small NET in colon and 2 lymph nodes beside it which are very slow growing and stable at the present time. Need advice on how to help the anxiety which is keeping me awake every night and making me feel on edge constantly. I am putting on a show for my family pretending that I am super confident and upbeat about the situation but inside I am almost screaming . I need some advice about how I can reconcile the way things are and how I can learn to live with the uncertainty without driving myself insane. Many thanks to anyone who reads this and for any advice you may have....