Hi. Just wondering if anyone has suffered with a rare endocrine cancer called Pheochromacytoma. I've now had it twice. The first time many years ago...a tumour on my adrenal gland and my second more recently with a tumour in my lung. To date I've only met one person with this type of cancer.
Hi Raelop and a very warm welcome to the online community
I don't have the same type of cancer as you but I noticed that you hadn't had any replies yet from other members of the group.
I typed 'pheochromacytoma' into the search bar to look for any previous posts about this type but unfortunately drew a blank. This might not mean that no one here has this, they might just not have posted about it yet.
I wondered if you'd looked on Neuroendocrine Cancer UK to see if you can connect with anyone there as I can understand that it would be great for you if you could chat with someone who has the same type of cancer.
Wishing you all the best
x
"Never regret a day in your life, good days give you happiness, bad days give you experience"
