Hello....

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My partner has just been diagnosed with a Pancreatic Neuroendocrine Tumour (PancNet).  While we're relieved that it's not the more aggressive exocrine type, the fact that it's rare and we're not near a specialist treatment centre is a worry.  Still more tests to go to determine the exact type of tumour, so no treatment plan yet.  Would be interested to hear from anyone who has PancNet re symptoms, treatment options etc.  Thanks! 

  • Hi and welcome to the Online Community. I'm not from this group as I have a different type of cancer so I can't offer any advice I'm sorry to say. This is a fairly quiet group so hopefully the members here will come along and answer. If you type "  Pancreatic Neuroendocrine Tumour" in to the the search bar at the top of this page I think you'll find some answers.

    It’s always helpful to others if you write a little something (or a lot) about yourself and your journey to date. You can enter it into your profile (click on your username and select “Profile”) It’s helpful to other members with a similar diagnosis who can then hopefully answer your questions. It also means that you don't have to keep writing the same thing over and over. You can amend or update it at any time. 

    To find more information covering diagnosis and treatments there are pages covering most types of cancers which can be found on our Online Information and Support Section

    Macmillan Support Services also offer lots of information, support, financial guidance or just someone to listen. It’s free to call 0808 808 0000. Most services are available 8am to 8pm, 7 days a week. Have a look by Clicking here to see what is available and we also have our Ask an Expert section, but do allow two to three working days for replies from our expert team.

    Sending you welcoming hugs B xx


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