My friend has terminal endocrine cancer and is now starting to experience pain and is trying to say she's ok but she very clearly isn't. I feel helpless and just wondering if it's cos she doesn't want to take the morphine pain killers... Would they knock...
Hi Several liver mets found during ultrasound scan on 28th January (was numb so didn't ask how many or how spread out) and so the search for the primary cancer began. Nothing found on a CT. scan. Liver biopsy indicated NET - but unknown site. Awaiting...
After an initial diagnosis of endometrial cancer, followed by a secondary diagnosis of ovarian cancer, it would seem that all are now settled on Neuroendocrine Cancer with Gynaecological origins ... allegedly rare, aggressive and incurable. It has been...
I was diagnosed on the 27th January with lung cancer but when I met oncologist I was told it was a rare Neuroendocrine cancer which had presented itself in my lung and had spread to my lymph node. It was and still is a huge learning curve for me. I have...
Hello. Sounds like my diagnosis is becoming my identity! This is all new, I"ve never been in a support group before so apologies if I'm on the wrong track. I don't want to use the site to grumble or moan but it's so exciting to think of sharing info and...
I have known about my nets for some months now and all treatment has been progressing well. However today I have been told I have a totally unrelated grade 3 brain tumor. Consequently feeling low.
Hello, I'm new on this forum, I joined the lung cancer forum previously not realising there was one for Neuroendocrine cancer. I was diagnosed in November 2021 with a Neuroendocrine cancer of the lung but have so far had no treatment. I had an Octreotide...
Ding ding round 2 . My story up to date in 2019 I was diagnosed with malignant melanoma lower leg then bang diagnosed with neuroendocrine cancer in the head of my pancreas last Yr all I know so far is it's size of a pea and waiting more tests as inflamed...
Hi I'm 55 fit and well with lovely career and active family life upto Dec, got a.pain in side, colon cancer 2 cm showed on colonoscopy. I felt relatively calm and OK until mri scan showed liver shadows. Confirmed in Jan NET, 10 lesions on my liver. Totally...
Hi everyone, Had scan 3 years ago pre heart operation that revealed unspecified ‘liver lesion’. Lesion has recently been identified as probable NET Various consultations and scans later my regional MDT has recommended ablation procedure Im waiting...
