Hi Everyone, I have just been diagnosed with a duodenum neuroendocrine tumour and I am scared stiff! I work for the NHS and had been working for Cancer services as an MDT co - ordinator for many years until 2019 and nothing has prepared me for this...
Hi, I'm 65 years old & live in Devon. I was diagnosed in January with primary tumour in pancreas and two secondaries in my liver. Also with Zollinger-Ellisson syndrome. The latter caused my hospitalisation over Christmas which led to my diagnosis and...
I'm male, 79 years old and I've just (July 2022) finished my second course of treatment after being diagnosed in June/July 2020. The first treatment was five cycles of cap/tem stopped one cycle early (January 2021) due to chest pains, but CT scans showed...
Hi everyone I was diagnosed with Nets , I have it in my Liver, Bowel, Bones, Lungs and it was in my right eye but I’ve now lost the eye so I have a prosthetic one, which I designed and it’s a clock which has the time of the nucleation . My cancer has...
Hi all. This is me. Diagnosed March 22. I have Grade 3 Neuroendocrine Cancer. Primary pancreas with mets to Liver. Ki67 50%. Prognosis 2/3 years.
My husband has recently been diagnosed with a NET of his pancreas but is also pushing into his spleen the surgeon at castlehill hospital in Hull is to remove the spleen and a.distal portion of the pancreas we are extremely naive we know nothing about...
Hi just joined, had bowel op 4 yrs ago and all fine till last September when scan showed new tumours in liver, on lanreotide for past year, currently on holiday in Greece , so hasn’t stopped me, just need to be organised with my man bag and essentials...
So hi I’ve been diagnosed with Nuc stage 4 grade 3 so I basically have this embedded in my liver, I don’t appear to have it anywhere else but not impressed that its living there rent free! I am having Chemo and about to have my 3rd cycle and then...
Hi Everyone, I have just had a colonoscopy that has picked up a polip that was proven under biopsy to be Net but non cancerous. I have to go for further investigations. But reading about Net's since I found out I have realised that I have lots of...
Hello,I am new to this forum. I have been diagnosed with neuroendocrine tumours in my small bowel. I am being treated with a hormone injection ,Somatuline Autogel (lanreotide) , I had to have my gallbladder removed in order to proceed with the treatment...
