Hello

  • 1 reply
  • 17 subscribers
  • 460 views

Ding ding round 2 . My story up to date in 2019 I was diagnosed with malignant melanoma  lower leg then bang diagnosed with neuroendocrine cancer in the head of my pancreas last Yr all I know so far is it's size of a pea and waiting more tests as inflamed bowel and swollen lymph nodes also showed up on a scan. This is like a never ending situation am in I would love to hear from anyone with the same diagnoses . I never have 2 day's alike with many symptoms but all way's in pain & fatigued 

  • Hello and a delayed welcome to the Online Community. I myself have a different cancer, I'm not from this group, an noticed you've not yet had a reply to your post. I hope someone comes along to reply soon though I know it is a very quiet group.

    I'm sorry to hear no two days are like but pain and fatigue is the constant, you have my sympathy.

    I'm attaching some reading matter on Neuroendocrine tumours (NETS) for you to take a look at, just click on the link I provided.

    It’s always helpful to others if you write a little something (or a lot) about yourself and your journey to date. You can enter it into your profile (click on your username and select “Profile”) It’s helpful to other members with a similar diagnosis who can then hopefully answer your questions. It also means that you don't have to keep writing the same thing over and over. You can amend or update it at any time. 

    Macmillan Support Services also offer lots of information, support, financial guidance or just someone to listen. It’s free to call 0808 808 0000. Most services are available 8am to 8pm, 7 days a week. Have a look by Clicking here to see what is available and we also have our Ask an Expert section, but do allow two to three working days for replies from our expert team.

    Sending you welcoming hugs B xx


    Community Champion Badge

    Womb cancer forum

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    "Never lose hope. Storms make people stronger and never last forever” - Roy T Bennett